Attendance at Fragile X Specialty Clinics: Facilitators and Barriers

Autor/inn/en	Kidd, Sharon A.; Raspa, Melissa; Clark, Renée; Usrey-Roos, Holly; Wheeler, Anne C.; Liu, Jessica A.; Wylie, Amanda; Sherman, Stephanie L.
Titel	Attendance at Fragile X Specialty Clinics: Facilitators and Barriers
Quelle	In: American Journal on Intellectual and Developmental Disabilities, 122 (2017) 6, S.457-475 (19 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1944-7515
Schlagwörter	Genetic Disorders; Predictor Variables; Individual Characteristics; Participation; Clinics; Children; Adolescents; Gender Differences; Age Differences; Racial Differences; Ethnicity; Regression (Statistics); Intellectual Disability; Parent Background; Educational Attainment; Family Income; Comorbidity; Severity (of Disability); Knowledge Level; Socioeconomic Status + Suchen Sie Ihr Suchwort? Prädiktor; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Teilnahme; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Geschlechterkonflikt; Age; Difference; Age difference; Altersunterschied; Rassenunterschied; Ethnizität; Regression; Regressionsanalyse; Intellect; Disability; Disabilities; Verstand; Behinderung; Elternhaus; Bildungsabschluss; Bildungsgut; Familieneinkommen; Schweregrad; Wissensbasis; Socio-economic status; Sozioökonomischer Status
Abstract	The objectives were to describe the demographic characteristics of children with Fragile X syndrome (FXS) and to determine predictors of attendance at Fragile X (FX) clinics. Findings from the Community Support Network (CSN) and Our Fragile X World (OFXW) samples showed that children who attended FX Clinics were mostly male, high-school aged or younger, and white, non-Hispanic. Using logistic regression models, awareness about FX Clinic services, guardian education, and income (CSN), and child age, family income, and total number of co-occurring conditions (OFXW) were predictors of clinic attendance. Demographic and child characteristics accounted for a large portion of the explained variance. Importantly, symptom severity and parent knowledge about services were independent predictors beyond the demographic characteristics of families. (As Provided).
Anmerkungen	American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://www.aaiddjournals.org/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01