At Home with Disability: One Family's Three Generations Narrate Autism

Autor/inn/en	Mouzourou, Chryso; Santos, Rosa Milagros; Gaffney, Janet S.
Titel	At Home with Disability: One Family's Three Generations Narrate Autism
Quelle	In: International Journal of Qualitative Studies in Education (QSE), 24 (2011) 6, S.693-715 (23 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0951-8398
DOI	10.1080/09518398.2010.529841
Schlagwörter	Siblings; Autism; Family Relationship; Interviews; Family Attitudes; Parent Attitudes; Caregiver Attitudes; Family Life; Home Schooling; Group Experience; Case Studies; Child Care; Coping; Family Characteristics; Normalization (Disabilities); Children; Foreign Countries; Phenomenology; Cyprus + Suchen Sie Ihr Suchwort? Sibling; Geschwister; Autismus; Interviewing; Interviewtechnik; Elternverhalten; Homeschooling; Home instruction; ; Hausunterricht; Heimschule; Case study; Fallstudie; Case Study; Kinderfürsorge; Kinderbetreuung; Bewältigung; Normalisierung; Child; Kind; Kinder; Ausland; Phenomenological psychology; Phänomenologie; Psychologie; Zypern
Abstract	We examined the lived experiences of a Cypriot family with a young child with autism. Semi-structured interviews with parents, siblings, and extended family members across three generations and observations of the family's daily activities were the primary data-generating methods. Critical events related to the disability diagnosis, the mother's decision to undertake a significant role in the child's education following negative interactions with professionals, and the family's daily accommodations to the child's needs emerged in narratives of multiple participants. Family narratives reflect the polyphony of experiences and responses shared by participants. The study illuminates the complexities of this experience and offers opportunities to rethink the interplay of disability, family, and culture in the context of research and practice. (Contains 2 tables, 1 figure and 2 notes.) (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10