Exploring the Experiences of People with Intellectual Disabilities when Service Users Die

Autor/inn/en	Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John
Titel	Exploring the Experiences of People with Intellectual Disabilities when Service Users Die
Quelle	In: British Journal of Learning Disabilities, 39 (2011) 4, S.259-265 (7 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/j.1468-3156.2010.00662.x
Schlagwörter	Mental Retardation; Focus Groups; Foreign Countries; Death; Friendship; Caregivers; Emotional Response; Barriers; Coping; Caregiver Role; Ireland + Suchen Sie Ihr Suchwort? Geistige Behinderung; Ausland; Sterbefall; Tod; Todesfall; Freundschaft; Caregiver; Carer; Betreuungsperson; Pfleger; Emotionales Verhalten; Bewältigung; Irland
Abstract	Research is lacking on the effect of the deaths of fellow service users on people with intellectual disabilities. This qualitative study formed part of a project which aimed to describe the provision of palliative care to people with intellectual disabilities in Ireland and to assess the population's palliative care needs. We report on findings from 16 focus groups held with staff in which participants described their perception of the experiences of people with intellectual disabilities when other service users die. Interviews were analysed using Framework Analysis. The findings highlight the emotional impact of the death of a friend on people with intellectual disabilities. Situations where staff facilitated the involvement of services users are described, and the study points to the benefits of this approach. Possible barriers to involvement are highlighted. The findings affirm the importance of ensuring that people with intellectual disabilities have a good understanding of the concept of death to alleviate the bereavement experience. (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10