Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals with Angelman Syndrome

Autor/inn/en	Zigler, Christina K.; Lin, Li; McFatrich, Molly; Lucas, Nicole; Gordon, Kelly L.; Jones, Harrison N.; Berent, Allyson; Panagoulias, Jennifer; Evans, Paula; Reeve, Bryce B.
Titel	Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals with Angelman Syndrome
Quelle	In: American Journal on Intellectual and Developmental Disabilities, 128 (2023) 3, S.204-218 (15 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1944-7515
Schlagwörter	Genetic Disorders; Test Validity; Observation; Communication Skills; Measures (Individuals); Test Reliability + Suchen Sie Ihr Suchwort? Testvalidität; Beobachtung; Kommunikationsstil; Messdaten; Testreliabilität
Abstract	There is a critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with Angelman syndrome (AS). To center the perspective of caregivers, our team developed the novel Observer-Reported Communication Ability (ORCA) measure using best practice guidelines, with the goal of developing a measure that could be administered to caregivers directly without the need for a certified administrator for use in clinical trials. To refine the draft measure, we conducted two rounds of cognitive interviews with 24 caregivers and a quantitative study including 249 caregivers. The results from both studies support the overall content validity, construct validity, and the reliability of the ORCA measure for individuals with AS[greater than or equal to]2 years old for use in research contexts. Future work should explore the responsiveness of ORCA measures to changes over time in a diverse sample. (As Provided).
Anmerkungen	American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01