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Autor/inn/enSicherman, Nachum; Law, Kiely; Lipkin, Paul H.; Loewenstein, George; Marvin, Alison R.; Buxbaum, Joseph D.
TitelInformation Avoidance and Information Seeking among Parents of Children with ASD
QuelleIn: American Journal on Intellectual and Developmental Disabilities, 126 (2021) 3, S.249-259 (11 Seiten)Infoseite zur Zeitschrift
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Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1944-7515
SchlagwörterInformation Seeking; Parents; Children; Autism; Pervasive Developmental Disorders; Clinical Diagnosis; Age Differences
AbstractWe estimated the effects of information avoidance and information seeking among parents of children diagnosed with autism spectrum disorder (ASD) on age of diagnosis. An online survey was completed by 1,815 parents of children with ASD. Children of parents who self-reported that they had preferred "not to know," reported diagnoses around 3 months later than other children. Children of parents who raised concerns that they perceived as having been dealt with adequately reported diagnoses about 4 months earlier, but the children of parents who reported raising concerns repeatedly and felt that those concerns were dealt with inadequately were diagnosed over a year later. These findings suggest that failure of educational and healthcare professionals, in either substituting for parents who avoid information, or supporting those who seek information, can significantly delay the age of diagnosis. (As Provided).
AnmerkungenAmerican Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2024/1/01
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