Illness Representations of Chronic Obstructive Pulmonary Disease (COPD) to Inform Health Education Strategies and Research Design-Learning from Rural Uganda

Autor/inn/en	Nagourney, Emily M.; Robertson, Nicole M.; Rykiel, Natalie; Siddharthan, Trishul; Alupo, Patricia; Encarnacion, Marysol; Kirenga, Bruce J.; Kalyesubula, Robert; Quaderi, Shumonta A.; Hurst, John R.; Checkley, William; Pollard, Suzanne L.
Titel	Illness Representations of Chronic Obstructive Pulmonary Disease (COPD) to Inform Health Education Strategies and Research Design-Learning from Rural Uganda
Quelle	In: Health Education Research, 35 (2020) 4, S.258-269 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0268-1153
DOI	10.1093/her/cyaa016
Schlagwörter	Chronic Illness; Diseases; Health Education; Foreign Countries; Rural Areas; Developing Nations; Attitudes; Health Services; Uganda + Suchen Sie Ihr Suchwort? Chronic disease; Chronische Krankheit; Disease; Krankheit; Gesundheitsaufklärung; Gesundheitsbildung; Gesundheitserziehung; Ausland; Rural area; Ländlicher Raum; Developing country; Developing countries; Entwicklungsland; Attitude; Einstellung; Verhalten; Health service; Gesundheitsdienst; Gesundheitswesen
Abstract	More than 90% of chronic obstructive pulmonary disease (COPD)-related deaths occur in low- and middle-income countries; however, few studies have examined the illness experiences of individuals living with and providing treatment for COPD in these settings. This study characterizes illness representations for COPD in Nakaseke, Uganda from the perspectives of health care providers, village health teams and community members (CMs) with COPD. We conducted 40 in-depth, semi-structured interviews (16 health care providers, 12 village health teams and 12 CMs, aged 25-80 years). Interviews were analyzed using inductive coding, and the Illness Representations Model guided our analysis. Stakeholder groups showed concordance in identifying causal mechanisms of COPD, but showed disagreement in reasons for care seeking behaviors and treatment preferences. CMs did not use a distinct label to differentiate COPD from other respiratory illnesses, and described both the physical and social consequences of COPD. Local representations can inform development of adapted educational and self-management tools for COPD. (As Provided).
Anmerkungen	Oxford University Press. Great Clarendon Street, Oxford OX2 6DP, UK. Tel: +44-1865-353907; Fax: +44-1865-353485; e-mail: jnls.cust.serv@oxfordjournals.org; Web site: http://her.oxfordjournals.org/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01