'Just Knowing' and the Challenges of Giving Medicines to Children with Severe and Profound Intellectual Disabilities: A Hermeneutic Inquiry

Autor/in	Doyle, Carmel
Titel	'Just Knowing' and the Challenges of Giving Medicines to Children with Severe and Profound Intellectual Disabilities: A Hermeneutic Inquiry
Quelle	In: British Journal of Learning Disabilities, 49 (2021) 1, S.3-12 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Doyle, Carmel)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/bld.12354
Schlagwörter	Severe Intellectual Disability; Chronic Illness; Comorbidity; Drug Therapy; Mothers; Parent Attitudes; Barriers; Needs + Suchen Sie Ihr Suchwort? Chronic disease; Chronische Krankheit; Mother; Mutter; Elternverhalten; Grundbedürfnis
Abstract	Background: Children with severe and profound intellectual disabilities experience multiple chronic health conditions requiring a variety of medications. The aim of this study was to explore mothers' lived experience of giving medicines to children with severe and profound intellectual disabilities. Materials and Methods: A hermeneutic phenomenological approach was adopted with a purposeful sample of 15 mothers adopted. Face-to-face interviews and participant diaries were utilised for data collection. Results: Themes were identified with one being that of "lived body" exploring how mothers "just know" or use their instincts and also the challenges they encountered in daily life when giving medicines. Conclusions: This paper provides insight into the complexity of giving medicines to children with severe and profound intellectual disabilities and the level of support required by mothers. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01