Awareness of Bone Health Risks in People with Epilepsy and Intellectual Disability

Autor/inn/en	Sawhney, Indermeet; Zia, Asif; Yazdi, Bahar; Shankar, Rohit
Titel	Awareness of Bone Health Risks in People with Epilepsy and Intellectual Disability
Quelle	In: British Journal of Learning Disabilities, 48 (2020) 3, S.224-231 (8 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Shankar, Rohit)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/bld.12321
Schlagwörter	Epilepsy; Intellectual Disability; At Risk Persons; Drug Therapy; Human Body; Injuries; Knowledge Level; Caregivers; Patients; Prevention + Suchen Sie Ihr Suchwort? Epilepsie; Intellect; Disability; Disabilities; Verstand; Behinderung; Risikogruppe; Menschlicher Körper; Wissensbasis; Caregiver; Carer; Betreuungsperson; Pfleger; Patient; Prävention; Vorbeugung
Abstract	Background: People with epilepsy (PWE) have a higher fracture risk than nonepilepsy populations. Antiepileptic drugs (AEDs) cause bone loss. Limited physical activity and poor dietary intake increase fracture risk in PWE. People with an intellectual disability have higher prevalence of epilepsy, likely to be on multiple AEDs, with poorer response, thus at a higher risk of sustaining fractures compared to general population. Ignorance of these issues can add to the risk. The study ascertains bone health knowledge in people with epilepsy and their carers. Materials and Methods: A literature search on intellectual disability, epilepsy, bone health and patient knowledge informed a codesign survey with a service user group. An easy read survey version was created. It was disseminated via NHS Trust clinicians to all service users and their carers receiving services from a specialist learning disability team (catchment population-1,000,000). Results: Thirty-four carers and 23 service users of total 148 eligible (response rate 38.5%) responded to the questionnaires disseminated by clinicians. Approximately 50% of carers and 25% of people with epilepsy had awareness of the increased fracture risk. Less than 25% of the respondents associated AEDs to bone loss. Less than a third were aware of protective strategies to reduce fracture risk. Conclusions: The survey showed significant knowledge shortcomings of both service user and carer groups of relationship between intellectual disability, epilepsy, its medications, fracture risk, and available risk reduction strategies. Clinicians need to be proactive in providing service users and carers with information around bone health and epilepsy. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01