A Critical Reflection on Accessing Women with Learning Disabilities to Participate in Research about Sensitive Subjects through Organisational Partnerships

Autor/inn/en	Earle, Sarah; Ledger, Sue; Tilley, Elizabeth; Walmsley, Jan; Chapman, Rohhss; Townson, Lou
Titel	A Critical Reflection on Accessing Women with Learning Disabilities to Participate in Research about Sensitive Subjects through Organisational Partnerships
Quelle	In: British Journal of Learning Disabilities, 48 (2020) 2, S.162-169 (8 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Earle, Sarah) ORCID (Tilley, Elizabeth)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/bld.12314
Schlagwörter	Females; Contraception; Intellectual Disability; Research; Research Problems; Recruitment; Organizations (Groups); Cooperation; Research Methodology; Ethics + Suchen Sie Ihr Suchwort? Weibliches Geschlecht; Empfängnisverhütung; Intellect; Disability; Disabilities; Verstand; Behinderung; Forschung; Forschungskritik; Recruiting; Rekrutierung; Co-operation; Kooperation; Research method; Forschungsmethode; Ethik
Abstract	Background: Contraceptive use by women with learning disabilities differs from that of nondisabled women of a similar age. Women with learning disabilities start contraception earlier and often use it when they are not sexually active. Hence, there is a need to hear directly from these women about their experiences of contraceptive decision-making. However, accessing women to discuss a sensitive topic such as contraception poses significant challenges to researchers. Materials and Methods: The study was qualitative in nature and involved conducting semi-structured interviews with 19 women. This paper reports on the methodological challenges and findings from the project which have wider implications for research on sensitive topics with hard-to-reach groups. It reflects critically on the challenges of accessing women with learning disabilities to participate in research on contraception. Results: Twelve of the 19 participants in our project were recruited through two organisations. Working in partnership with organisations that had a keen interest in the research and endorsed it at senior level enabled us to overcome recruitment challenges. However, working in this way raised gatekeeping issues that impacted upon data collection and may have affected our substantive findings. Conclusions: Working in partnership with organisations can be an effective and practical way of recruiting participants that researchers may otherwise find hard to reach. However, organisational partnerships can be hard to develop and take time. We argue that it is important to reflect openly and honestly about the methodological and ethical issues that may arise when working closely with organisations in sensitive research. (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01