Family Caregivers of People Who Have Intellectual/Developmental Disabilities and Asthma: Caregiver Knowledge of Asthma Self-Management Concepts--A Pilot Study

Autor/inn/en	Erickson, Steven R.; Juncaj, Sophia; Buckley, Charlotte
Titel	Family Caregivers of People Who Have Intellectual/Developmental Disabilities and Asthma: Caregiver Knowledge of Asthma Self-Management Concepts--A Pilot Study
Quelle	In: British Journal of Learning Disabilities, 46 (2018) 3, S.172-181 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Erickson, Steven R.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/bld.12223
Schlagwörter	Diseases; Intellectual Disability; Developmental Disabilities; At Risk Persons; Physical Health; Drug Therapy; Caregivers; Intervention; Knowledge Level; Literacy; Barriers; Patient Education; Self Management + Suchen Sie Ihr Suchwort? Disease; Krankheit; Intellect; Disability; Disabilities; Verstand; Behinderung; Entwicklungsstörung; Risikogruppe; Gesundheitszustand; Caregiver; Carer; Betreuungsperson; Pfleger; Wissensbasis; Alphabetisierung; Schreib- und Lesefähigkeit; Selbstmanagement
Abstract	Background: People who have an intellectual or developmental disability (IDD) and asthma are at greater risk of poor health outcomes. They often require assistance from caregivers when managing their medicines. The objective of this pilot study was to assess the level of understanding of asthma self-management concepts of family caregivers who provide assistance to people who IDD and asthma. Results will inform future needs assessment and intervention studies. Materials and Methods: Nineteen caregivers of people who have asthma and IDD completed a mailed survey. The survey included scales to measure asthma self-management concepts, inhaler technique knowledge, medication adherence and control of asthma. The caregivers were instructed to complete most of the scales with reference to the person with IDD. Results: Most caregivers had acceptable health literacy, but had low scores on the asthma self-management and inhaler technique tests. The most frequently cited barriers to controlling asthma were inadequate caregiver and patient education about the illness as well as knowing and avoiding asthma triggers. The most frequently cited barriers to medication management were knowing inhaler technique, knowledge of medication and forgetting to use medication. Asthma was controlled in 63.2% of patients, while almost 75% of patients were considered nonadherent to controller therapy. Conclusions: Most caregivers had inadequate understanding of asthma self-management as well as inhaler technique despite having high health literacy. Improving caregiver and patient knowledge and skills may lead to better asthma control. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01