"I Hope He Goes First": Exploring Determinants of Engagement in Future Planning for Adults with a Learning Disability Living with Ageing Parents. What Are the Issues? A Literature Review

Autor/in	Bibby, Rita
Titel	"I Hope He Goes First": Exploring Determinants of Engagement in Future Planning for Adults with a Learning Disability Living with Ageing Parents. What Are the Issues? A Literature Review
Quelle	In: British Journal of Learning Disabilities, 41 (2013) 2, S.94-105 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/j.1468-3156.2012.00727.x
Schlagwörter	Literature Reviews; Adults; Learning Disabilities; Parents; Older Adults; Aging (Individuals); Caregivers; Barriers; Ethnic Groups; Severe Disabilities; Interpersonal Relationship; Human Services; Foreign Countries; United Kingdom + Suchen Sie Ihr Suchwort? Learning handicap; Lernbehinderung; Eltern; Älterer Erwachsener; Aging; Altern; Caregiver; Carer; Betreuungsperson; Pfleger; Ethnie; Severe disability; Schwerbehinderung; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Humanitäre Hilfe; Ausland; Großbritannien
Abstract	This paper reports on the key findings from a review of the literature on future planning for adults with a learning disability who live with older parents and carers. This area has gained attention in recent years, owing to the improved life expectancy of people with a learning disability and the increasing number who now outlive their parents. For those currently living with older parents and carers, this has major implications for the future, with the likelihood that formal services will eventually take over the care role. It is suggested that the presence of a plan for the future, formulated at a time of stability and in advance of any crisis, may lead to improved outcomes for this next phase of life. However, regardless of several policy initiatives to encourage active planning for the future, the take-up rate remains poor. This review of the literature seeks to offer an explanation for this through identifying the barriers to future planning as experienced by people with a learning disability and their older carers. The evidence suggests that there are ten key barriers to engagement in future planning. Consideration is given to each of these in turn, and a common thread is identified, that of the quality of the relationships between the families and the professionals who they come into contact with. Gaps in the research are considered, and the need for further work identified to reflect the views of black and minority ethnic families and so-called hidden families who are not known to statutory services. Also highlighted is the lack of participation in the research of those people with more severe disabilities who use alternative methods of communication. (Contains 2 tables.) (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10