The Need for Future Alternatives: An Investigation of the Experiences and Future of Older Parents Caring for Offspring with Learning Disabilities over a Prolonged Period of Time

Autor/inn/en	Cairns, Deborah; Tolson, Debbie; Brown, Jayne; Darbyshire, Chris
Titel	The Need for Future Alternatives: An Investigation of the Experiences and Future of Older Parents Caring for Offspring with Learning Disabilities over a Prolonged Period of Time
Quelle	In: British Journal of Learning Disabilities, 41 (2013) 1, S.73-82 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/j.1468-3156.2012.00729.x
Schlagwörter	Parent Child Relationship; Caregivers; Qualitative Research; Foreign Countries; Health; Learning Disabilities; Older Adults; Futures (of Society); Social Support Groups; Resources; Semi Structured Interviews; United Kingdom + Suchen Sie Ihr Suchwort? Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Caregiver; Carer; Betreuungsperson; Pfleger; Qualitative Forschung; Ausland; Gesundheit; Learning handicap; Lernbehinderung; Älterer Erwachsener; Future; Society; Zukunft; Social support; Soziale Unterstützung; Betriebsmittel; Hilfsmittel; Großbritannien
Abstract	This article reports on the results of a qualitative study (in-depth interviews) carried out in the United Kingdom as part of a larger (two-phased) study investigating the experiences, health and future perspectives of older parent carers (six mothers and two fathers) of offspring with learning disabilities over a prolonged period of time. The objectives of this article are twofold: (i) to present a conceptual framework, grounded in the experiences of older parent carers who participated in this research and; (ii) to come to a more in-depth understanding of older parent carers' experiences of caregiving, and views on their own future. A detailed analysis of the data revealed important issues with regard to prolonged caregiving. Overall, older parent carers felt that they lacked support, information and practical resources throughout their caregiving career. Some parents continued in their caregiving role despite their deteriorating mental and/or physical health as there appeared to be no alternative, and most parent carers expressed that they were unable to think ahead to their own future and needs owing to the absence of suitable care alternatives. The findings suggest that there is an urgent need to review how individuals with learning disabilities and parent carers are supported throughout their lifespan. (Contains 1 figure and 2 tables.) (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10