Listening to Bodies and Watching Machines: Developing Health Information Skills, Tools and Services for People Living with Chronic Kidney Disease

Autor/in	Godbold, Natalya
Titel	Listening to Bodies and Watching Machines: Developing Health Information Skills, Tools and Services for People Living with Chronic Kidney Disease
Quelle	In: Australian Academic & Research Libraries, 44 (2013) 1, S.14-28 (15 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0004-8623
DOI	10.1080/00048623.2013.773859
Schlagwörter	Patients; Information Needs; Information Sources; Computer Mediated Communication; Group Discussion; Social Networks; Social Support Groups; Chronic Illness; Health Materials; Information Technology; Health Promotion; Information Services; Information Skills + Suchen Sie Ihr Suchwort? Patient; Information need; Informationsbedürfnis; Information source; Informationsquelle; Computerkonferenz; Gruppendiskussion; Social network; Soziales Netzwerk; Social support; Soziale Unterstützung; Chronic disease; Chronische Krankheit; Informationstechnologie; Gesundheitsfürsorge; Gesundheitshilfe; Reihenuntersuchung; Informationstätigkeit; Informationskompetenz; Orientierungswissen
Abstract	When patients need information, they may visit a doctor, ask a nurse, or look online. But these are not the only sources of information used by patients. This paper examines discussion threads in online renal support groups to describe how people living with kidney failure conceive of help, information and support. I use Actor Network Theory to locate unexpected sources of information and authority such as information obtained from lived experiences, from bodies or from the machinery used to maintain health. By virtue of being embedded in networks of interrelating elements, the patient emerged as a potential information locus: potentially able to confirm information such as medical measurements, make measurements themselves, generate information related to their own sensations, and summarise information about the trajectory of their illness. Implications for practice include an expanded conception of health information literacy for patients, and expanded possibilities for health information service provision. (Contains 3 figures.) (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10