End-of-Life Care and Dying: Issues Raised by Staff Supporting Older People with Intellectual Disability in Community Living Services

Autor/inn/en	Wiese, Michele; Stancliffe, Roger J.; Balandin, Susan; Howarth, Glennys; Dew, Angela
Titel	End-of-Life Care and Dying: Issues Raised by Staff Supporting Older People with Intellectual Disability in Community Living Services
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 25 (2012) 6, S.571-583 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12000
Schlagwörter	Health Services; Caring; Independent Living; Ethics; Grounded Theory; Death; Mental Retardation; Focus Groups; Older Adults; Interviews; Knowledge Level; Foreign Countries; Caregivers; Quality of Life; Altruism; Australia + Suchen Sie Ihr Suchwort? Health service; Gesundheitsdienst; Gesundheitswesen; Care; Pflege; Sorge; Betreuung; Selbstverantwortung; Ethik; Sterbefall; Tod; Todesfall; Geistige Behinderung; Älterer Erwachsener; Interviewing; Interviewtechnik; Wissensbasis; Ausland; Caregiver; Carer; Betreuungsperson; Pfleger; Lebensqualität; Altruistic behavior; Altruismus; Australien
Abstract	Background: The aim of this study was to explore the current status of end-of-life care and dying of people with intellectual disability based on the experiences of staff in community living services. Materials and Methods: Focus groups and individual interviews were conducted, guided by grounded theory methodology. Results: The current status of end-of-life care and dying comprised five key "issues": knowledge of dying, ethical values, the where of caring, the how of caring and post-death caring. These issues occurred in relationship with "partners", including the dying person, other clients, fellow staff, family, external health services and the coroner. Conclusions: End-of-life care represents a complex interaction between the care issues and the partners involved in care. Despite this complexity, staff were committed to the provision of end-of-life care. (Contains 1 note, 1 table, and 1 figure.) (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10