A Mother's Perceptions of Her Ongoing Advocacy Efforts for Her Son with Significant Disabilities: Her Twelve-Year Journey

Autor/inn/en	Ryndak, Diane Lea; Orlando, Ann-Marie; Storch, Jill F.; Denney, Maria K.; Huffman, Jaqueline
Titel	A Mother's Perceptions of Her Ongoing Advocacy Efforts for Her Son with Significant Disabilities: Her Twelve-Year Journey
Quelle	In: International Journal of Whole Schooling, 7 (2011) 2, S.74-91 (18 Seiten) PDF als Volltext kostenfreie Datei Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1710-2146
Schlagwörter	Mothers; Multiple Disabilities; Advocacy; Sons; Special Education; Parent Attitudes; Federal Legislation; Decision Making; Interviews; Conflict; Stress Variables; Family (Sociological Unit); Related Services (Special Education); Educational Experience; Down Syndrome; Pervasive Developmental Disorders + Suchen Sie Ihr Suchwort? Mother; Mutter; Multiple disability; Mehrfachbehinderung; Sozialanwaltschaft; Son; Sohn; Special needs education; Sonderpädagogik; Sonderschulwesen; Elternverhalten; Bundesrecht; Decision-making; Entscheidungsfindung; Interviewing; Interviewtechnik; Konflikt; Familie; Bildungserfahrung; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom
Abstract	IDEIA mandates that parents be active participants in the educational decision-making process for their children. It is recommended that parents and professionals collaborate for individualized educational services for students with disabilities, especially for students with significant disabilities. Research suggests that parents must advocate for the curriculum content, instructional services, and placement they believe to be appropriate for their child. The purpose of this retrospective study was to explore the experiences of one mother as she advocated over a twelve-year period for effective special education services for her son with significant disabilities. This study used a series of interviews to explore one mother's perceptions of: (a) educational service providers who served her son; (b) the services provided for her son; (c) her decision-making process that resulted in her son transferring between schools multiple times; and (d) her reflections about her family's experiences with the education system. Two primary themes emerged: (a) the perception of congruence or conflict between the mother's views of her son and the educational service providers' views; and (b) family stress during transitions. Limitations of the study and suggestions for future research are presented. (As Provided).
Anmerkungen	Whole Schooling Consortium. Available from: Concordia University College of Alberta. 7128 Ada Boulevard, Edmonton, AB T5B 4E4, Canada. e-mail: wholeschooling@twmi.rr.com; Web site: http://www.wholeschooling.net
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10