Assessment of the Quality of Life in Families with Children Who Have Intellectual and Developmental Disabilities in Slovenia

Autor/inn/en	Cagran, B.; Schmidt, M.; Brown, I.
Titel	Assessment of the Quality of Life in Families with Children Who Have Intellectual and Developmental Disabilities in Slovenia
Quelle	In: Journal of Intellectual Disability Research, 55 (2011) 12, S.1164-1175 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0964-2633
DOI	10.1111/j.1365-2788.2011.01400.x
Schlagwörter	Mental Retardation; Family Life; Quality of Life; Developmental Disabilities; Foreign Countries; Social Services; Family Environment; Children; Surveys; Well Being; Family Income; Leisure Time; Recreational Activities; Careers; Values; Social Support Groups; Family Relationship; Interaction; Health; Slovenia + Suchen Sie Ihr Suchwort? Geistige Behinderung; Lebensqualität; Entwicklungsstörung; Ausland; Social service; Soziale Dienstleistung; Soziale Dienste; Familienmilieu; Child; Kind; Kinder; Survey; Umfrage; Befragung; Well-being; Wellness; Wohlbefinden; Familieneinkommen; Freizeit; Freizeitgestaltung; Career; Karriere; Wertbegriff; Social support; Soziale Unterstützung; Interaktion; Gesundheit; Slowenien
Abstract	Background: Research was conducted, within the framework of the International Family Quality of Life Project, on the quality of life of families with a member who has a disability. We concentrated on the nine specific domains that the family life measure used, and recorded data from five of its six measurement dimensions: "Importance, Opportunities, Initiative, Attainment and Satisfaction." Method: The sample consisted of 20 families from Slovenia with children who have intellectual or developmental disabilities. The data were collected using the "Family Quality of Life Survey-2006." Results: Except for Community Interaction, the other domains (Health, Financial Well-Being, Family Relations, Support from Others, Support Services, Influence of Values, Careers, Leisure and Recreation) show statistically significant differences among the five dimensions measured. "Importance" was rated highest, and "Attainment" and "Opportunities" were rated lowest, while "Initiative" and "Satisfaction" were evaluated lower than "Importance" but higher than "Attainment" and "Opportunities." Among the domains of family life, Family Relations was evaluated the highest from the perspective of all five dimensions. Conclusions: The family members rated "Importance" high for all of the quality of family life domains, but it appears from the lower "Opportunities" scores that their opportunities are limited; this may result in fewer possibilities for attaining a better quality of life. The results of our research are useful to Slovene researchers who work in the areas of special pedagogy and rehabilitation, politicians, non-governmental organisations and social services. The quality of life of families with children with disabilities, their empowerment and their inclusion into community life should be significantly enhanced when consideration is given to all the family members' support and service needs. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10