Study Healthy Ageing and Intellectual Disabilities: Recruitment and Design

Autor/inn/en	Hilgenkamp, Thessa I. M.; Bastiaanse, Luc P.; Hermans, Heidi; Penning, Corine; van Wijck, Ruud; Evenhuis, Heleen M.
Titel	Study Healthy Ageing and Intellectual Disabilities: Recruitment and Design
Quelle	In: Research in Developmental Disabilities: A Multidisciplinary Journal, 32 (2011) 3, S.1097-1106 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0891-4222
DOI	10.1016/j.ridd.2011.01.018
Schlagwörter	Mental Retardation; Older Adults; Health; Caregivers; Recruitment; Research Design; Measures (Individuals); Communication (Thought Transfer) + Suchen Sie Ihr Suchwort? Geistige Behinderung; Älterer Erwachsener; Gesundheit; Caregiver; Carer; Betreuungsperson; Pfleger; Recruiting; Rekrutierung; Forschungsdesign; Messdaten; Communication; thought; Kommunikation; Gedanke
Abstract	Problems encountered in epidemiologic health research in older adults with intellectual disabilities (ID) are how to recruit a large-scale sample of participants and how to measure a range of health variables in such a group. This cross-sectional study into healthy ageing started with founding a consort of three large care providers with a total client population of 2322 clients of 50 years and over, and two academic institutes. This consort made formal agreements about a research infrastructure and research themes: (1) physical activity and fitness, (2) nutrition and nutritional state, and (3) mood and anxiety. Subsequently, preparation was started by carefully reviewing and selecting instruments to measure a wide set of health variables to answer the research questions. Specific demands of these instruments were that they could be executed efficiently and accurately on-site in a large sample of participants and that the burden of these measurements for participants as well as their caregivers was as minimal as possible. Then, preparation was continued by designing and executing a thorough communication plan for clients, legal representatives and staff of the care providers, preceding the informed consent procedure. In this plan, which had a top-down structure, specific attention was given to personally informing and motivating of key stakeholders: the professional care givers. This preparation led to a recruitment of 1050 participants (45.2%) and to high participation rates in key parts of the assessment. A detailed description is provided about the recruitment and organization and the selected instruments. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10