The Experiences of Parents during Diagnosis and Forward Planning for Children with Autism Spectrum Disorder

Autor/inn/en	Keenan, Mickey; Dillenburger, Karola; Doherty, Alvin; Byrne, Tony; Gallagher, Stephen
Titel	The Experiences of Parents during Diagnosis and Forward Planning for Children with Autism Spectrum Disorder
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 23 (2010) 4, S.390-397 (8 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/j.1468-3148.2010.00555.x
Schlagwörter	Intervention; Autism; Disability Identification; Parents; Foreign Countries; Clinical Diagnosis; Child Rearing; Parent Attitudes; Pervasive Developmental Disorders; Planning; Questionnaires; Stress Variables; Parent Participation; Ireland; United Kingdom (Northern Ireland) + Suchen Sie Ihr Suchwort? Autismus; Eltern; Ausland; Kindererziehung; Elternverhalten; Ablaufplanung; Planungsprozess; Fragebogen; Elternmitwirkung; Irland
Abstract	Background: For families of children diagnosed with autism spectrum disorder (ASD) getting a diagnosis is a traumatic experience on which future care and education plans for the child depend. In this paper parental experiences of diagnosis and forward planning for children with ASD are reported. Method: This paper is part of a large cross-sectional study conducted in Northern Ireland and the Republic of Ireland that assessed the needs and experiences of parents of children diagnosed with ASD. Questionnaires were designed and completed by 95 parents, reporting on 100 children, as well as 67 multi-disciplinary professionals. Results: Findings confirm that diagnostic and planning processes are extremely stressful for parents, that statutory diagnosis takes a long time, that care and education plans do not include full parental participation, and that reviews of plans do not consistently include intervention data. Conclusion: Policy and practice implications of these findings are important for future revisions of diagnostic tools and manuals. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10