African-American Developmental Disability Discourses: Implications for Policy Development

Autor/in	Terhune, Peggy S.
Titel	African-American Developmental Disability Discourses: Implications for Policy Development
Quelle	In: Journal of Policy and Practice in Intellectual Disabilities, 2 (2005) 1, S.18-28 (11 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1741-1122
DOI	10.1111/j.1741-1130.2005.00004.x
Schlagwörter	Low Income Groups; Developmental Disabilities; African Americans; Public Policy; Policy Formation; Females; Attitude Measures; Adults; Caregivers; Social Services; World Views; Interviews; Racial Differences; Cultural Influences + Suchen Sie Ihr Suchwort? Entwicklungsstörung; Afroamerikaner; Öffentliche Ordnung; Politische Betätigung; Weibliches Geschlecht; Caregiver; Carer; Betreuungsperson; Pfleger; Social service; Soziale Dienstleistung; Soziale Dienste; World view; Weltanschauung; Interviewing; Interviewtechnik; Rassenunterschied; Cultural influence; Kultureinfluss
Abstract	Formal developmental disabilities services are often underutilized, especially by low-income African-American families. This study examined the basis for interactions and service use preferences of African-American woman who cared for an adult female child with a disability. Diverse African-American perspectives were observed by analyzing the discourse of 11 low-income African-American carers using a direct informant interview technique. Two distinct discourses were identified: a "secular professional" discourse and a "spiritual kin" discourse. Families using the secular professional discourse made use of formal developmental disabilities services in a manner similar to European-American heritage families. Families using the spiritual kin discourse tended to rely on natural or informal supports rather than the developmental disabilities service system, as the system did not exemplify the values that these families profess. It was observed that the discourses result in two distinct worldviews, and two distinct ways of accessing the developmental disabilities system. Recommendations are proffered for changes within the developmental disabilities service system to accommodate diverse cultures and families. A key recommendation involves modifying the system to accommodate worldviews of disability other than the currently used scientific biomedical view. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10