A Qualitative Self-Study of Retinitis Pigmentosa

Autor/in	Fourie, Robert James
Titel	A Qualitative Self-Study of Retinitis Pigmentosa
Quelle	In: British Journal of Visual Impairment, 25 (2007) 3, S.217-232 (16 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0264-6196
DOI	10.1177/0264619607079794
Schlagwörter	Visual Impairments; Qualitative Research; Disability Identification; Adjustment (to Environment); Attitudes toward Disabilities; Coping; Experience; Foreign Countries; Ireland + Suchen Sie Ihr Suchwort? Visual handicap; Sehbehinderung; Qualitative Forschung; Bewältigung; Erfahrung; Ausland; Irland
Abstract	Retinitis Pigmentosa (RP) is a retinal degenerative disease causing progressive blindness. Most research on RP is biomedical, and mostly from an observer perspective, therefore poorly reflecting the lived experience of having RP. Accordingly, the researcher conducted a retrospective qualitative self-study, to analyze reflections on his own experience of diagnosis and receiving a mobility cane, as contained in emails sent to friends and colleagues. This analysis yielded a number of interesting themes significant to the RP experience, namely diagnosis, impact and dealing with RP. Reference is made to literature encouraging ophthalmologists to be actively involved in the facilitation of adjustment to loss of vision. Other significant issues relevant to visual impairment, such as the stigma associated with the long cane and challenging the dominant social discourse regarding disability, are discussed. In addition, the importance of qualitative research to elicit the stories of blind individuals is highlighted. (Contains 3 tables and 1 note.) (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10