Moving towards Midlife Care as Negotiated Family Business: Accounts of People with Intellectual Disabilities and Their Families "Just Getting along with Their Lives Together"

Autor/inn/en	Knox, Marie; Bigby, Christine
Titel	Moving towards Midlife Care as Negotiated Family Business: Accounts of People with Intellectual Disabilities and Their Families "Just Getting along with Their Lives Together"
Quelle	In: International Journal of Disability, Development and Education, 54 (2007) 3, S.287-304 (18 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1034-912X
Schlagwörter	Learning Disabilities; Midlife Transitions; Family Life; Family (Sociological Unit); Interviews; Interpersonal Relationship; Social Indicators; Social Theories; Social Values; Social Science Research; Helping Relationship; Caregivers; Foreign Countries; Australia + Suchen Sie Ihr Suchwort? Learning handicap; Lernbehinderung; Midlife-Krise; Familie; Interviewing; Interviewtechnik; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Social indicator; Sozialer Indikator; Gesellschaftstheorie; Sozialer Wert; Social scientific research; Sozialwissenschaftliche Forschung; Helfende Beziehung; Caregiver; Carer; Betreuungsperson; Pfleger; Ausland; Australien
Abstract	This study explores meanings of family care held by seven families that include a middle-aged adult with intellectually disability. In-depth interviews were conducted with members of each family--the person with intellectual disability, parents, siblings, and sibling spouses. Participants described care as simply getting on with their lives, as "Family Business", characterised by the conduct of well-understood tasks and routines. As such, all, including the person with intellectual disability, performed roles critical to the well-being of each other and the family as a whole. Family Business was underpinned by negotiated, albeit often implicit, rules that reflected family values and were amenable to changes in circumstances throughout the lifecycle. Future planning was perceived as a sensitive whole family issue. Interdependence among members was key to retaining family independence from formal services that were regarded as a "top up". Suggested is the importance of services adopting a relational approach to understanding family care and supporting future planning for middle-aged people with intellectual disabilities, rather than simply focusing on "older carers". (Contains 1 table.) (Author).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10