Who Owns Your Consent? How REBs Give Away Participants' Agency

Autor/inn/en	Aurini, Janice; Iafolla, Vanessa
Titel	Who Owns Your Consent? How REBs Give Away Participants' Agency
Quelle	In: Research Ethics, 19 (2023) 4, S.474-493 (20 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Aurini, Janice)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1747-0161
DOI	10.1177/17470161231180829
Schlagwörter	Research; Ethics; Qualitative Research; Participation; Informed Consent; Personal Autonomy; Organizations (Groups) + Suchen Sie Ihr Suchwort? Forschung; Ethik; Qualitative Forschung; Teilnahme; Individuelle Autonomie
Abstract	We draw on three illustrative vignettes to examine how REBs manage participants' agency in the context of qualitative research. We ask: Who owns a participant's consent? Central to informed consent is the principle of "Respect for Persons," which privileges the autonomy of individuals to make decisions about what happens (or not) to them. Yet, REBs sometimes require researchers to get permission from organizations to conduct research on their current and former members, even when the research is not about those organizations. Our aim is to raise awareness about the inherent contradictions of this practice and to consider guidelines for determining the appropriateness of involving organizations that may be tangentially connected to the research objectives or potential participants. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01