Literaturnachweis - Detailanzeige
| Autor/inn/en | Santos, Telmo; Steinway, Caren; Mastrogiannis, Ariana; Chen, Jack; Woodward, Jason; Riddle, Ilka; Spicer, Brittany; Berens, John; Davis, Thomas; Cornacchia, Michelle; Wright, Charmaine; Lindquist, Lee A.; Jan, Sophia |
|---|---|
| Titel | Caregiver Support, Burden, and Long-Term Planning among Caregivers of Individuals with Intellectual and Developmental Disabilities: A Cross-Sectional Study |
| Quelle | In: Journal of Applied Research in Intellectual Disabilities, 36 (2023) 6, S.1229-1240 (12 Seiten)Infoseite zur Zeitschrift
PDF als Volltext |
| Zusatzinformation | ORCID (Jan, Sophia) |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 1360-2322 |
| DOI | 10.1111/jar.13141 |
| Schlagwörter | Caregivers; Long Range Planning; Health Services; Social Support Groups; Barriers; Intellectual Disability; Developmental Disabilities; Behavior; New York; Ohio; Pennsylvania; Texas |
| Abstract | Background: Long-term care planning (LTCP) is critical for individuals with intellectual/developmental disabilities. Objectives of this study were to investigate progression through LTCP, and associations between social support and: (1) LTCP and (2) burden among family caregivers. Methods: A cross-sectional survey was distributed to caregivers of individuals with intellectual/developmental disabilities in NY, OH, PA, and TX, exploring demographics, supports, burden, and LTCP behaviours. Bivariate and linear multiple regression analyses were used to investigate study objectives. Results: Caregivers (n = 405) were predominantly parents, female, non-Hispanic, and in the 'learning to plan' stage of LTCP. Caregiver-identified social support was associated with further progression in LTCP (p = 0.020) and lower caregiver burden (p <0.001). Conclusion: Social support was associated with further progression in LTCP, and associated with less burden, however fewer than 40% of caregivers reported having social support. Ongoing exploration of emotional/social needs of caregivers is necessary to better support these families. (As Provided). |
| Anmerkungen | Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2024/1/01 |
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