Barriers to Service and Unmet Need among Autistic Adolescents and Young Adults

Autor/inn/en	Ishler, Karen J.; Berg, Kristen A.; Olgac, Tugba; Obeid, Rita; Biegel, David E.
Titel	Barriers to Service and Unmet Need among Autistic Adolescents and Young Adults
Quelle	In: Autism: The International Journal of Research and Practice, 27 (2023) 7, S.1997-2010 (14 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Ishler, Karen J.) ORCID (Berg, Kristen A.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613221150569
Schlagwörter	Autism Spectrum Disorders; Adolescents; Young Adults; Caregivers; Barriers; Services; Needs; Costs; Access to Education; Access to Health Care; Individual Characteristics; Social Services; Ohio; Scales of Independent Behavior + Suchen Sie Ihr Suchwort? Autism; Autismus; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Young adult; Junger Erwachsener; Caregiver; Carer; Betreuungsperson; Pfleger; Dienstleistung; Grundbedürfnis; Cost; Kosten; Education; Access; Bildung; Zugang; Bildungszugang; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Social service; Soziale Dienstleistung; Soziale Dienste
Abstract	Many of the nearly six million autistic adolescents and adults in the United States require support to navigate daily life. Family members often provide the first line of support for autistic youth by providing care and coordinating services. Although considerable research has examined the perspectives of family members caring for young autistic children, comparatively less has focused on those caring for transition-age youth who often struggle to access needed services as they leave child-serving systems of care. This study examined caregiver-reported barriers to service for 174 adolescents and young adults on the spectrum (ages 16-30) and the association between such barriers and unmet service needs. Exploratory factor analysis suggested two service barrier domains: access (e.g., cost) and quality (e.g., providers not trained). Regression models indicated that caregivers whose youth were diagnosed at older ages perceived both greater access and quality barriers. Male caregivers reported fewer access barriers, and those who perceived greater caregiver burdens (daily life disruptions, financial difficulties, and worries) reported more access barriers. Caregivers whose youth lived with them reported fewer quality barriers. Greater access--but not quality--service barriers predicted greater unmet service needs. Findings have implications for service delivery to autistic youth and specific directions for future research. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01