Psychological Adjustment of Siblings of Children with Prader-Willi Syndrome

Autor/inn/en	Bennett Murphy, Laura; Thornton, Jane; Thornton, Emma
Titel	Psychological Adjustment of Siblings of Children with Prader-Willi Syndrome
Quelle	In: Journal of Intellectual & Developmental Disability, 48 (2023) 2, S.196-205 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1366-8250
DOI	10.3109/13668250.2022.2132630
Schlagwörter	Siblings; Genetic Disorders; Disabilities; Children; Adjustment (to Environment); Psychological Patterns; Anxiety; Depression (Psychology); Quality of Life; Family Environment; Symptoms (Individual Disorders); Posttraumatic Stress Disorder; Family Characteristics; Well Being; Positive and Negative Affect Schedule; Family Environment Scale + Suchen Sie Ihr Suchwort? Sibling; Geschwister; Handicap; Behinderung; Child; Kind; Kinder; Angst; Lebensqualität; Familienmilieu; Psychiatrische Symptomatik; Well-being; Wellness; Wohlbefinden
Abstract	Background: Siblings of children with Prader-Willi syndrome (PWS) may be at elevated risk for poor psychological adjustment (Mazaheri, M. M., Rae-Seebach, R. D., Preston, H. E., Schmidt, M., Kountz-Edwards, S., Field, N., Cassidy, S., Packman, Wet al. (2013). The impact of Prader-Willi syndrome on the family's quality of life and caregiving, and the unaffected siblings' psychosocial adjustment. "Journal of Intellectual Disability Research," 57(9), 861-873. ; O'Neill, L. P., & Murray, L. E. (2016). Anxiety and depression symptomatology in adult siblings of individuals with different developmental disability diagnoses. "Research in Developmental Disabilities," 51, 116-125. ). The current study describes psychological distress and symptoms of post-traumatic stress disorder (PTSD) in non-disabled siblings. Method: Fifty-eight siblings and 86 parents participated. Results: Parents reported that almost 40% of siblings had psychological symptoms that exceeded clinical cut-off scores; 58.9% of siblings reported symptoms of PTSD that exceeded diagnostic cut-off scores. Symptoms were significantly related to family organisation and control per parent report and negative affect per sibling report. Conclusion: Growing up with a sibling with PWS may challenge adaptive resources of non-disabled siblings, leaving them vulnerable to psychological distress. Those who care for children with PWS are in a unique position to educate families about the potential vulnerability of non-disabled siblings. We encourage routine screening and support for affected family members, especially siblings. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01