Family and Caregiver Characteristics Contribute to Caregiver Change in Use of Strategies and Growth in Child Spoken Language in a Parent-Implemented Language Intervention in Fragile X Syndrome

Autor/inn/en	Potter, Sarah Nelson; Bullard, Lauren; Banasik, Amy; Tempero Feigles, Robyn; Nguyen, Vivian; McDuffie, Andrea; Thurman, Angela John; Hagerman, Randi; Abbeduto, Leonard
Titel	Family and Caregiver Characteristics Contribute to Caregiver Change in Use of Strategies and Growth in Child Spoken Language in a Parent-Implemented Language Intervention in Fragile X Syndrome
Quelle	In: Perspectives of the ASHA Special Interest Groups, 7 (2022) 6, S.1630-1644 (15 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Potter, Sarah Nelson) ORCID (Bullard, Lauren) ORCID (McDuffie, Andrea) ORCID (Thurman, Angela John) ORCID (Hagerman, Randi) ORCID (Abbeduto, Leonard)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
Schlagwörter	Family Characteristics; Child Language; Oral Language; Intervention; Parent Attitudes; Mental Health; Anxiety; Parenting Skills; Barriers; Learning Strategies; Change; Parent Child Relationship; Genetic Disorders; Intellectual Disability; Congenital Impairments; Children; Adolescents; Parents; Child Rearing; Stress Variables; Parenting Stress Index + Suchen Sie Ihr Suchwort? 'Children''s language'; Kindersprache; Oral interpretation; Mündlicher Sprachgebrauch; Elternverhalten; Psychohygiene; Angst; Learning methode; Learning techniques; Lernmethode; Lernstrategie; Wandel; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Intellect; Disability; Disabilities; Verstand; Behinderung; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Eltern; Kindererziehung
Abstract	Purpose: This study examined relationships among family characteristics, caregiver change in use of strategies, and child growth in spoken language over the course of a parent-implemented language intervention (PILI) that was developed to address some of the challenges associated with the fragile X syndrome (FXS) phenotype. Method: Participants were 43 parent-child dyads from two different PILI studies, both of which taught parents various language facilitation strategies to support child language. Before starting the intervention, parents reported on their mental health, parenting stress, and parenting competence. This study focused on potential barriers to treatment gains by examining correlations between the measures of parent well-being and: (1) parent change in use of intervention strategies taught in the PILI; and (2) changes in child language outcomes from pre- to post-intervention. Results: Parents in this study had elevated mental health symptoms across several domains and increased rates of parenting stress. Furthermore, although PILI resulted in treatment gains for both parents and children, a variety of parent mental health symptoms were found to be significantly and negatively associated with change in use of strategies and growth in child language over the course of the intervention. Some inconsistent findings also emerged regarding the relationships between parenting stress and competence and change in parent strategy use and growth in child language. Conclusions: This study provides preliminary evidence that parents who are experiencing significant mental health challenges may have a more difficult time participating fully in PILIs and that there may be subsequent effects on child outcomes. Future PILIs could benefit from addressing parent well-being as a substantial part of the intervention program. (As Provided).
Anmerkungen	American Speech-Language-Hearing Association. 2200 Research Blvd #250, Rockville, MD 20850. Tel: 800-638-8255; Fax: 301-296-8580; e-mail: perspectives@asha.org; https://perspectives.pubs.asha.org/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01