Reliable Assessment of Pain Behaviour in Adults with Profound Intellectual and Multiple Disabilities: The Development of an Instruction Protocol

Autor/inn/en	Enninga, Annemieke; Waninge, Aly; Post, Wendy J.; van der Putten, Annette A. J.
Titel	Reliable Assessment of Pain Behaviour in Adults with Profound Intellectual and Multiple Disabilities: The Development of an Instruction Protocol
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 36 (2023) 3, S.653-663 (11 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Enninga, Annemieke) ORCID (Waninge, Aly) ORCID (Post, Wendy J.) ORCID (van der Putten, Annette A. J.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.13089
Schlagwörter	Test Reliability; Pain; Behavior; Adults; Severe Intellectual Disability; Multiple Disabilities; Interrater Reliability + Suchen Sie Ihr Suchwort? Testreliabilität; Schmerz; Multiple disability; Mehrfachbehinderung; Interrater-Reliabilität
Abstract	Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. "Aim" To determine how pain items can be reliably scored in adults with PIMD. Methods: We developed an instruction protocol for the assessment of pain-related behaviour in four phases. We used videos of 57 adults with PIMD during potentially painful situations. The items were assessed for inter-rater reliability (Cohen's kappa or percentage of agreement). Results: The developed instruction protocol appeared to be adequate. Twelve items had satisfactory inter-rater reliability (n = 9: 0.30-1.00; n = 3: 85%-100%). Discussion: Calibrating and adjustments to the instructions and item set appeared to be crucial to reliably score 12 items in adults with PIMD. Further research should focus on creating an assessment instrument based on these reliably scored items. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01