Experiences of People with Intellectual Disability and Dementia: A Systematic Review

Autor/inn/en	Jacobs, Paula; Watchman, Karen; Wilkinson, Heather; Hoyle, Louise; McGenily, Laura
Titel	Experiences of People with Intellectual Disability and Dementia: A Systematic Review
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 36 (2023) 2, S.241-258 (18 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Jacobs, Paula) ORCID (Watchman, Karen) ORCID (Wilkinson, Heather) ORCID (Hoyle, Louise)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.13063
Schlagwörter	Intellectual Disability; Dementia; Metacognition; Clinical Diagnosis; Experience; Environmental Influences; Self Concept + Suchen Sie Ihr Suchwort? Intellect; Disability; Disabilities; Verstand; Behinderung; Demenz; Meta cognitive ability; Meta-cognition; Metakognitive Fähigkeit; Metakognition; Erfahrung; Environmental influence; Umwelteinfluss; Selbstkonzept
Abstract	Background: Dementia disproportionately affects people with intellectual disability. Most qualitative studies explore their experiences by utilising proxy-reports. A smaller number of studies illustrate the possibility of exploring perspectives directly from people with intellectual disability and dementia. Method: This systematic review synthesised findings from existing studies (n = 8) that involve people with intellectual disability and dementia as participants to understand their experiences of dementia. Searches were conducted using CINAHL, PsychInfo and Social Services Abstracts. Results: Findings include descriptions of changes in individual functioning, a narrowing of social worlds and of how people made sense of the changes despite often having no knowledge of their dementia diagnosis. Additionally, discussion focuses on how people's experiences are shaped by their environments. Conclusion: The review recognises the complexities of speaking to people with intellectual disability about dementia, challenges views that people with intellectual and dementia cannot be involved in research and makes recommendations to support inclusion in future studies. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01