"I Think It Impacts All Areas of His Life": Perspectives on Hearing from Mothers of Individuals with Down Syndrome

Autor/inn/en	Porter, Heather L.; Braza, Meredith D.; Knox, Randi; Vicente, Manuel; Buss, Emily; Leibold, Lori J.
Titel	"I Think It Impacts All Areas of His Life": Perspectives on Hearing from Mothers of Individuals with Down Syndrome
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 36 (2023) 2, S.333-342 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.13062
Schlagwörter	Down Syndrome; Parent Attitudes; Mothers; Hearing Impairments; Children; Adults; Adolescents; Environmental Influences; Barriers; Listening; Coping; Interpersonal Communication; Acoustics + Suchen Sie Ihr Suchwort? 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Elternverhalten; Mother; Mutter; Hearing impairment; Hörbehinderung; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Environmental influence; Umwelteinfluss; Hörvorgang; Zuhören; Bewältigung; Interpersonale Kommunikation; Akustik
Abstract	Background: Individuals with Down syndrome are known to have high rates of hearing loss, but it is unclear how this impacts their ability to communicate and function in real-world environments. Methods: Sixteen English-speaking and Spanish-speaking mothers of individuals with Down syndrome ages 6-40 years participated in individual, semi-structured interviews using a videoconferencing platform. Session transcripts were analysed using applied thematic analysis. Results: Mothers described listening environments, the impact of hearing on daily life, barriers to successful listening, and strategies to overcome communication barriers for their children with Down syndrome. Conclusions: Hearing was largely discussed in terms of challenges and detriments, suggesting that hearing experiences are predominately considered to negatively impact the functional abilities of individuals with Down syndrome. Background noise and hearing loss were sources of communication difficulties. Parent-reported barriers and strategies can inform ecologically valid research priorities aimed at improving outcomes for individuals with Down syndrome. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01