eHealth Content-Sharing and Emotional Support among Italian Parents of Children with Down Syndrome: A Qualitative Report

Autor/inn/en	Boursier, Valentina; Gioia, Francesca; Coppola, Federica; Schimmenti, Adriano
Titel	eHealth Content-Sharing and Emotional Support among Italian Parents of Children with Down Syndrome: A Qualitative Report
Quelle	In: Journal of Intellectual & Developmental Disability, 47 (2022) 3, S.240-251 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1366-8250
DOI	10.3109/13668250.2021.1964153
Schlagwörter	Foreign Countries; Parents; Access to Information; Information Dissemination; Child Health; Computer Mediated Communication; Internet; Down Syndrome; Parent Child Relationship; Barriers; Family Needs; Parent Attitudes; Emotional Response; Social Support Groups; Coping; Italy + Suchen Sie Ihr Suchwort? Ausland; Eltern; Informationsverbreitung; Computerkonferenz; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Elternverhalten; Emotionales Verhalten; Social support; Soziale Unterstützung; Bewältigung; Italien
Abstract	Parents of children with special healthcare needs search the Internet to learn about and share health-related information. Indeed, online communities (OCs) often increase knowledge and skills, decreasing feelings of isolation and distress. The current study explored the content and functioning of an Italian OC comprising parents of children with Down Syndrome. Following a netnographic method, data were analysed through the Latent Thematic Analysis. Five main themes emerged: the e-group, the child, prescriptive knowhow, being a parent, and personal experience across time. The findings illustrated the complex relationship between parents and children with Down Syndrome within the OC, exploring psychological themes recurring in parents of children with Down Syndrome. Within the e-group, special children and parental challenges can be described, sharing concerns, conflicting emotions, and experience-based information, countering Down Syndrome difficulties and social isolation. Clinicians and healthcare professionals should consider the OCs-related advantages to enhance the healthcare of parents and children with Down Syndrome. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01