Consensus Statements on Optimal Adult Post-Autism Diagnosis Support and Services: Delphi Process Following a UK Survey of Autistic Adults, Relatives and Clinicians

Autor/inn/en	Wigham, Sarah; Ingham, Barry; Le Couteur, Ann; Wilson, Colin; Ensum, Ian; Parr, Jeremy R.
Titel	Consensus Statements on Optimal Adult Post-Autism Diagnosis Support and Services: Delphi Process Following a UK Survey of Autistic Adults, Relatives and Clinicians
Quelle	In: Autism: The International Journal of Research and Practice, 27 (2023) 2, S.344-355 (12 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Wigham, Sarah)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613221097502
Schlagwörter	Autism Spectrum Disorders; Adults; Clinical Diagnosis; Foreign Countries; Health Services; Access to Health Care; Stakeholders; Social Support Groups; United Kingdom + Suchen Sie Ihr Suchwort? Autism; Autismus; Ausland; Health service; Gesundheitsdienst; Gesundheitswesen; Social support; Soziale Unterstützung; Großbritannien
Abstract	Opportunities for adults to access support following a clinical diagnosis of autism are limited. This study investigated perspectives of autistic adults, relatives and clinicians regarding characteristics of optimal adult autism post-diagnosis support and services. In Stage 1, key stakeholders were surveyed about recent experiences of UK adult autism post-diagnostic services immediately following assessment/up to 12 months afterwards. Information gathered from Stage 1 was used to devise a set of statements describing optimal post-autism diagnostic support/service characteristics. In Stage 2 statements were presented to clinicians in a modified Delphi process. Data analyses were non-parametric and descriptive. Three hundred forty-three autistic adults and 45 relatives completed the Stage 1 surveys. Thirty-five clinicians completed a parallel survey. Just over half of adults and relatives reported receiving a follow-up appointment. Fewer than 40% of autistic people received support/services 12 months after diagnosis. Eleven statements describing optimal post-autism diagnostic support/service provision were developed and consensus among clinicians was reached on all. Autistic adults, relatives and clinicians described some aspects of post-autism diagnosis support and services positively; however, there were significant opportunities for improvement. The study findings can be used to develop current UK post-diagnosis support and services and may be relevant internationally. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01