An Analysis of Current Model Programmes for Adults with Neurodevelopmental Disorders

Autor/inn/en	Agarwal, Rumi; Maddux, Marlaina; Marolda, Heather; Quintana, Jordan; Wagner, Eric; Burke, Shanna
Titel	An Analysis of Current Model Programmes for Adults with Neurodevelopmental Disorders
Quelle	In: International Journal of Disability, Development and Education, 69 (2022) 2, S.578-593 (16 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Burke, Shanna)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1034-912X
DOI	10.1080/1034912X.2020.1719048
Schlagwörter	Adults; Program Evaluation; Neurological Impairments; Developmental Disabilities; Intellectual Disability; Down Syndrome; Pervasive Developmental Disorders; Autism; Cerebral Palsy; Congenital Impairments; Genetic Disorders + Suchen Sie Ihr Suchwort? Programme evaluation; Programmevaluation; Neurodegenerative Erkrankung; Entwicklungsstörung; Intellect; Disability; Disabilities; Verstand; Behinderung; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Autismus; Hirnlähmung
Abstract	Programmes which offer integrated services were analysed to identify model international and domestic programmes serving adults with neurodevelopmental disorders. Programmes were assessed according to 11 need domains identified in a previous study: supervision, transportation, housing, communication, finances/employment opportunities, activities of daily living/instrumental activities of daily living training, socialisation opportunities, enhanced adult-centred medical care, psychological, medical equipment, and sexual health education. In addition, programmes which served adults within six diagnosis comprising intellectual disability (ID), autism spectrum disorder (ASD), cerebral palsy (CP), spina bifida (SB), Down syndrome (DS), and Prader-Willi syndrome (PWS) were considered. Only three international and three domestic programmes demonstrated the required criteria to be considered a comprehensive model programme. Identified model programmes provided at least eight of the 11 needs, while only two programmes served all identified domains. This study offers insight into the needs provided, which can be used to inform modifications and development of existing and new programmes. It illustrates the necessity for programmes to focus on social and sexual needs as much as medical and health services. Consequences of gaps in provided services can have direct implications on the biopsychosocial functioning of individuals with neurodevelopmental disorders including a lowered quality of life. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01