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Autor/inn/enChicas, Vanessa E.; Steinway, Caren; Chen, Jack; Schwartz, Matthew C.; Wright, Charmaine; Cornacchia, Michelle; Davis, Thomas W.; Berens, John C.; Riddle, Ilka; Woodward, Jason F.; Jan, Sophia
TitelIdentifying Key Components of a Web-Based Long Term Care Planning Intervention for Family Caregivers of Individuals with Intellectual/Developmental Disabilities
QuelleIn: Journal of Applied Research in Intellectual Disabilities, 35 (2022) 3, S.867-877 (11 Seiten)Infoseite zur Zeitschrift
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ZusatzinformationORCID (Jan, Sophia)
Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1360-2322
DOI10.1111/jar.12991
SchlagwörterCaregivers; Intellectual Disability; Developmental Disabilities; Long Range Planning; Barriers; Intervention; Technology Uses in Education; Financial Support; Housing; Federal Programs; Caregiver Attitudes; New York; Pennsylvania; Ohio; Delaware; Texas
AbstractBackground: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with intellectual or developmental disabilities in NY, PA, OH, DE, and TX to identify barriers and facilitators of LTC planning, review existing tools, and identify critical features for web-based LTC planning interventions. Participants also answered questions on demographic characteristics and functional status. Results: NVivo qualitative analysis software was used to analyse focus groups using a grounded theory approach. Caregivers identified web tool accessibility and topics such as finances, housing, and government benefits as critical. Caregivers also described desired features for a LTC planning tool. Conclusions: This study identified desired characteristics of web-based LTC planning tools and ways in which existing web-based interventions might be adapted or enhanced. (As Provided).
AnmerkungenWiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2024/1/01
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