Impact of COVID-19 on the Burden of Care of Families of People with Intellectual and Developmental Disabilities

Autor/inn/en	Navas, Patricia; Verdugo, Miguel Ángel; Martínez, Sergio; Amor, Antonio M.; Crespo, Manuela; Deliu, Madalin M.
Titel	Impact of COVID-19 on the Burden of Care of Families of People with Intellectual and Developmental Disabilities
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 35 (2022) 2, S.577-586 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Navas, Patricia) ORCID (Verdugo, Miguel Ángel) ORCID (Amor, Antonio M.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12969
Schlagwörter	COVID-19; Pandemics; Foreign Countries; Intellectual Disability; Developmental Disabilities; Access to Health Care; Stress Variables; Family Role; Spain + Suchen Sie Ihr Suchwort? Ausland; Intellect; Disability; Disabilities; Verstand; Behinderung; Entwicklungsstörung; Spanien
Abstract	Aim: This study analysed the impact that COVID-19 and the response measures implemented by the Spanish Government have had on families of individuals with intellectual and developmental disabilities. Method: Data on 323 family members (M = 52.3 years old; SD = 10.5) were collected through an online survey, which was focused on analysing difficulties experienced and service provision during lockdown. Results: Many families (66.3%) have seen their level of stress increased during lockdown because of, among other reasons, a greater burden of care. Difficulties were associated with the closure and changes in disability-related services. Families of people with extensive support needs have generally experienced greater difficulties. Conclusion: Support services should have been considered essential services during lockdown. The failure to receive support has resulted in excessive burden on families, who had to assume a multitude of roles to support their family member with intellectual and developmental disability. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01