Distilling Innovative US Autism Care Programs That Address Widely Perceived Unmet Patient and Family Needs

Autor/inn/en	Wong, Venus; Pham, Mai; Godfrey, Kristen; Milstein, Arnold
Titel	Distilling Innovative US Autism Care Programs That Address Widely Perceived Unmet Patient and Family Needs
Quelle	In: Autism: The International Journal of Research and Practice, 26 (2022) 1, S.281-286 (6 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Wong, Venus) ORCID (Milstein, Arnold)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613211027999
Schlagwörter	Autism; Pervasive Developmental Disorders; Services; Quality of Life; Adults; Family Attitudes; Allied Health Personnel; Researchers; Program Effectiveness; Caregivers + Suchen Sie Ihr Suchwort? Autismus; Dienstleistung; Lebensqualität; Researcher; Forscher; Caregiver; Carer; Betreuungsperson; Pfleger
Abstract	Current mainstream care for autistic individuals is fragmented, narrow, and poorly individualized. To better describe cutting-edge autism care, we searched for care programs in the United States that had been collaboratively designed with patients and families and that carry the highest potential to improve the quality of life of autistic individuals and their families. Using a modified Delphi method, we gathered input via conversations and surveys from 55 autistic adults, family members, practicing clinicians, and autism specialized researchers. As a result, 90 innovative autism care programs were nominated. We distilled these nominations to 15 programs across the United States by applying researcher-selected criteria, such as providing services actively and having data on program effectiveness. Then, we recruited 10 experts to rate the novelty, clinical benefits to individuals, clinical benefits to family caregivers, care costs for autistic individuals, societal costs, adaptability, and feasibility of the 15 programs. Common features of the 15 programs include care coordination and integration, care delivery, payment, and providing care in underserved clinical areas. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01