Meeting the Needs of Autistic Adults in Qatar: Stakeholder Perspectives on Gaps in Services and Priorities for Future Programming

Autor/inn/en	Habayeb, Serene; Al-Harahsheh, Sanaa; Ratto, Allison; Verbalis, Alyssa; Pugliese, Cara; Nadwodny, Nicole; Al-Meer, Feras; El-Akoum, Maha
Titel	Meeting the Needs of Autistic Adults in Qatar: Stakeholder Perspectives on Gaps in Services and Priorities for Future Programming
Quelle	In: Autism: The International Journal of Research and Practice, 26 (2022) 1, S.88-100 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Habayeb, Serene)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613211020623
Schlagwörter	Foreign Countries; Autism; Pervasive Developmental Disorders; Respite Care; Adolescents; Young Adults; Trust (Psychology); Reliability; Quality of Life; Inclusion; Delivery Systems; Barriers; Family Needs; Family Attitudes; Stakeholders; Government Role; Employment; Cultural Influences; Qatar + Suchen Sie Ihr Suchwort? Ausland; Autismus; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Young adult; Junger Erwachsener; Reliabilität; Lebensqualität; Inklusion; Auslieferung; Dienstverhältnis; Cultural influence; Kultureinfluss; Katar
Abstract	Autism services in Qatar are expanding rapidly, but focus predominantly on young children. The shortage of qualified autism providers and minimal opportunities for autistic youth to participate in school, work, and community have led to a growing population of autistic youth transitioning to adulthood with substantial unmet needs for behavioral support and instruction in critical life skills. Our objective was to identify the needs and preferences for respite care for autistic adolescents and young adults in Qatar utilizing family and stakeholder input. Researchers from the United States collaborated with researchers and community leaders from Qatar to evaluate perspectives regarding respite care with families of autistic people (n = 11) and providers/community stakeholders (n = 20) through surveys and focus groups. Four main themes emerged including (1) a need for trust and reliability of individuals and of systems to support autistic adults, (2) prioritizing quality of life for autistic individuals and their families, (3) seeking meaningful inclusion, and (4) challenges stemming from service delivery systems. Families in Qatar endorsed clear interest in respite care services for young adults with autism, regardless of their child's age. This study highlights the value of including both provider expertise and family concerns in developing new services for an under-served community. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01