Participatory Autism Research: Early Career and Established Researchers' Views and Experiences

Autor/inn/en	Pickard, Hannah; Pellicano, Elizabeth; den Houting, Jacquiline; Crane, Laura
Titel	Participatory Autism Research: Early Career and Established Researchers' Views and Experiences
Quelle	In: Autism: The International Journal of Research and Practice, 26 (2022) 1, S.75-87 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Pellicano, Elizabeth) ORCID (den Houting, Jacquiline) ORCID (Crane, Laura)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613211019594
Schlagwörter	Autism; Pervasive Developmental Disorders; Participatory Research; Researchers; Interpersonal Relationship; Interpersonal Communication; Experience; Diversity; Barriers; Research Methodology + Suchen Sie Ihr Suchwort? Autismus; Forschungstätigkeit; Researcher; Forscher; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Interpersonale Kommunikation; Erfahrung; Research method; Forschungsmethode
Abstract	Despite more autism research taking place than ever before, there is a disconnect between the current landscape of autism research and what autistic people and their allies want from research. While participatory research has been proposed as a potential solution, we know little about how researchers (particularly, early career researchers) employ this approach. We interviewed 25 researchers (14 early career and 11 established researchers) about their views and experiences of participatory autism research. Through reflexive thematic analysis of interview and focus group data, we identified three themes. First, our participants emphasised the flexible nature of participatory research, and the many forms it can take; yet noted that this flexibility could cause confusion. Second, our participants highlighted the importance of building relationships with research partners, while commenting on the challenges around effective communication and working with diverse groups of people who may have limited research experience. Finally, participants described the challenges of working within academic environments that are not conducive to participatory research (e.g. due to limited time, funding and support). We discuss these issues with regard to changes required at both an individual and systemic level, ensuring that efforts are made to meaningfully involve autistic people and their allies in all stages of the research process. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01