Facilitating the Inclusion of Adults with Intellectual Disability as Direct Respondents in Research: Strategies for Fostering Trust, Respect, Accessibility and Engagement

Autor/inn/en	McDonald, Katherine E.; Gibbons, Colleen; Conroy, Nicole; Olick, Robert S.
Titel	Facilitating the Inclusion of Adults with Intellectual Disability as Direct Respondents in Research: Strategies for Fostering Trust, Respect, Accessibility and Engagement
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 35 (2022) 1, S.170-178 (9 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (McDonald, Katherine E.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12936
Schlagwörter	Adults; Intellectual Disability; Research; Sampling; Research Methodology; Inclusion; Trust (Psychology); Interpersonal Relationship; Accessibility (for Disabled); Individual Needs + Suchen Sie Ihr Suchwort? Intellect; Disability; Disabilities; Verstand; Behinderung; Forschung; Research method; Forschungsmethode; Inklusion; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Accessibility; Zugänglichkeit
Abstract	Background: Adults with intellectual disability experience disparities in social determinants of health and health outcomes. While new knowledge can advance health equity, adults with intellectual disability are frequently excluded from being direct respondents in research. Their inclusion requires addressing scientific and ethical challenges that contribute to their exclusion. Method: We describe our multi-phased process, inclusive of community-engagement, to develop a self-report survey for adults with intellectual disability and share findings from an institutional ethnography conducted to identify strategies for facilitating inclusion. We also assessed indicators of the quality of these strategies. Results: We identified building trust, showing respect, designing in accessibility, maximising flexibility and allowing individualised accommodations as strategies that foster inclusion. Multiple indicators validate the effectiveness of these strategies. Conclusions: Researchers can promote first-person decision-making and direct research participation by focusing on promoting accessibility, trust, respect and engagement. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01