Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers--A Perspective from the SPARK Cohort

Autor/inn/en	White, L. Casey; Law, J. Kiely; Daniels, Amy M.; Toroney, Jaimie; Vernoia, Brianna; Xiao, Sabrina; Feliciano, Pamela; Chung, Wendy K.
Titel	Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers--A Perspective from the SPARK Cohort
Quelle	In: Journal of Autism and Developmental Disorders, 51 (2021) 10, S.3766-3773 (8 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (White, L. Casey) ORCID (Law, J. Kiely) ORCID (Daniels, Amy M.) ORCID (Chung, Wendy K.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0162-3257
DOI	10.1007/s10803-020-04816-6
Schlagwörter	COVID-19; Pandemics; Autism; Pervasive Developmental Disorders; Caregivers; Experience; Therapy; Delivery Systems; Children + Suchen Sie Ihr Suchwort? Autismus; Caregiver; Carer; Betreuungsperson; Pfleger; Erfahrung; Therapie; Auslieferung; Child; Kind; Kinder
Abstract	The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented. [Co-written with the SPARK Consortium.] (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01