Development and Sensibility Assessment of a Health-Related Quality of Life Instrument for Adults with Severe Disabilities Who Are Non-Ambulatory

Autor/inn/en	Zalmstra, Trees A. L.; Elema, Agnes; van Gils, Willemijn; Reinders-Messelink, Heleen A.; van der Sluis, Corry K.; van der Putten, Annette A. J.
Titel	Development and Sensibility Assessment of a Health-Related Quality of Life Instrument for Adults with Severe Disabilities Who Are Non-Ambulatory
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 34 (2021) 4, S.1127-1135 (9 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Zalmstra, Trees A. L.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12873
Schlagwörter	Quality of Life; Adults; Severe Disabilities; Physical Disabilities; Test Construction; Test Items; Test Validity + Suchen Sie Ihr Suchwort? Lebensqualität; Severe disability; Schwerbehinderung; Physical handicap; Körperbehinderung; Testaufbau; Test content; Testaufgabe; Testvalidität
Abstract	Background: Insight in health-related quality of life (HRQoL) of adults with severe disabilities who are non-ambulatory is important, but a measure is lacking. The aim was to develop a HRQoL measure for this group. Method: The developmental process consisted of the adaptation process of a proxy HRQoL measure for children with severe disabilities who are non-ambulatory and the assessment of the sensibility of the developed instrument. A three-step process was used: focus groups, e-survey and interviews. Results: In total, 72% of the items remained unchanged. Three new items and one element to an existing item were added. In ten items, the formulation of the items was adapted to the target group. Concerning the sensibility, respondents suggested minor changes to the instruction and the output scales. Conclusions: This study has yielded a proxy HRQoL measure for adults with severe disabilities who are non-ambulatory, the CPADULT, with good sensibility. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01