Feeling of Grief and Loss in Parental Caregivers of Adults Diagnosed with Intellectual Disability

Autor/inn/en	Fernández-Ávalos, María Inmaculada; Pérez-Marfil, María Nieves; Ferrer-Cascales, Rosario; Cruz-Quintana, Francisco; Fernández-Alcántara, Manuel
Titel	Feeling of Grief and Loss in Parental Caregivers of Adults Diagnosed with Intellectual Disability
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 34 (2021) 3, S.712-723 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Fernández-Ávalos, María Inmaculada) ORCID (Pérez-Marfil, María Nieves)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12842
Schlagwörter	Intellectual Disability; Children; Parent Attitudes; Grief; Adults; Emotional Response; Clinical Diagnosis; Parent Child Relationship; Psychological Patterns; Coping + Suchen Sie Ihr Suchwort? Intellect; Disability; Disabilities; Verstand; Behinderung; Child; Kind; Kinder; Elternverhalten; Trauer; Emotionales Verhalten; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Bewältigung
Abstract	Background: The diagnosis of intellectual disability in children can produce complex grief-related feelings in their parents. Previous studies have focused on the moment of the diagnosis or the early life of the children, and little research has been conducted on their feelings of grief in adulthood. The objective was to analyse the process of grief/loss in parents of adult offspring with intellectual disability. Method: The intentional sampling included sixteen parents who responded to semi-structured interviews. A qualitative study was conducted based on grounded theory. Results: Five categories were identified: "Reception of the diagnosis", "Emotional bonds with the child", "Experience of loss and feelings in response to intellectual disability diagnosis", "Recurrent grief" and "Coping strategies". Conclusions: Recurring feelings of loss experienced by parents in relation to their child's diagnosis persist over time. Specialized emotional interventions are needed to help parents to reduce the intensity of their feelings of grief. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01