Anxiety in Autistic Individuals Who Speak Few or No Words: A Qualitative Study of Parental Experience and Anxiety Management

Autor/inn/en	Tarver, Joanne; Pearson, Effie; Edwards, Georgina; Shirazi, Aryana; Potter, Liana; Malhi, Priya; Waite, Jane
Titel	Anxiety in Autistic Individuals Who Speak Few or No Words: A Qualitative Study of Parental Experience and Anxiety Management
Quelle	In: Autism: The International Journal of Research and Practice, 25 (2021) 2, S.429-439 (11 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Tarver, Joanne)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361320962366
Schlagwörter	Anxiety; Autism; Pervasive Developmental Disorders; Communication Disorders; Communication Skills; Interpersonal Communication; Verbal Communication; Children; Adolescents; Parent Attitudes; Knowledge Level; Intervention; Family Environment; Behavior Problems; Coping; Emotional Response; Behavior Modification; Foreign Countries; United Kingdom (England) + Suchen Sie Ihr Suchwort? Angst; Autismus; Kommunikationsstörung; Kommunikationsstil; Interpersonale Kommunikation; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Elternverhalten; Wissensbasis; Familienmilieu; Bewältigung; Emotionales Verhalten; Behaviour modification; Verhaltensänderung; Ausland
Abstract	Anxiety is a common co-occurring condition in autism and impacts quality of life of autistic individuals and their families; autistic individuals who speak few or no words represent an under-researched group. This qualitative study aimed to understand more about parental recognition and management of anxiety in autistic individuals who speak few or no words. Semi-structured interviews were conducted with parents/carers of 17 autistic individuals (m[subscript age] = 14.29) recruited from an existing participant database and social media adverts. Using thematic analysis, 15 themes were placed under three a-priori grand themes: parental recognition of anxiety; parental management of anxiety; and anxiety impact on the autistic individual and their family. Due to reduced verbal language use and overlap with other behaviours, parents described difficulties recognising anxiety in their child. However, they also described use of a number of management strategies, including some which overlap with components of evidence-based interventions for emotional and behavioural problems in autistic individuals (e.g. exposure/sensory calming). Despite this, parents reported that anxiety continues to have significant impact on quality of life. The findings of this study can help to inform the development of targeted intervention and assessment measures for anxiety in autistic individuals who speak few or no words. (As Provided).
Anmerkungen	SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01