Literaturnachweis - Detailanzeige
| Autor/inn/en | Bernal, Jane; Hunt, Katherine; Worth, Rhian; Shearn, Julia; Jones, Edwin; Lowe, Kathy; Todd, Stuart |
|---|---|
| Titel | Expecting the Unexpected: Measures, Outcomes and Dying Trajectories for Expected and Unexpected Death in Adults with Intellectual Disabilities in Social Care Settings in the UK |
| Quelle | In: Journal of Applied Research in Intellectual Disabilities, 34 (2021) 2, S.594-605 (12 Seiten)Infoseite zur Zeitschrift
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| Zusatzinformation | ORCID (Bernal, Jane) ORCID (Hunt, Katherine) ORCID (Todd, Stuart) |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 1360-2322 |
| DOI | 10.1111/jar.12827 |
| Schlagwörter | Foreign Countries; Death; Adults; Intellectual Disability; Social Services; United Kingdom |
| Abstract | Background: Considerable attention is rightly paid to preventable deaths in adults with intellectual disabilities. The pattern of these deaths and the implications for services have been less considered. Method: This paper forms part of a larger cross-sectional study of deaths in a defined population of adults with intellectual disabilities. Data from VOICES-SF were obtained from intellectual disability service providers for each death within their supported population over 18 months, 149 decedents in all. Results: Only 34.2% of deaths were anticipated, death was often sudden or followed a short illness. Four dying trajectories were identified, and categorized by length of illness, service use, care outcomes, symptom control and cause of death. Conclusions: Recognition that most deaths in this group were unanticipated implies a need for better preparation for less expected dying and better anticipation. A descriptive epidemiology of dying among people with intellectual disabilities is needed. (As Provided). |
| Anmerkungen | Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2024/1/01 |
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