Community Participation of Families of Children with Profound Intellectual and Multiple Disabilities in South Africa

Autor/inn/en	McKenzie, Judith Anne; Kahonde, Callista; Mostert, Karen; Aldersey, Heather Michelle
Titel	Community Participation of Families of Children with Profound Intellectual and Multiple Disabilities in South Africa
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 34 (2021) 2, S.525-536 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (McKenzie, Judith Anne) ORCID (Kahonde, Callista)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12818
Schlagwörter	Family Involvement; Family Needs; Community Services; Child Caregivers; Participant Satisfaction; Children; Severe Intellectual Disability; Multiple Disabilities; Caregiver Attitudes; Barriers; Foreign Countries; South Africa (Cape Town) + Suchen Sie Ihr Suchwort? Gemeindenahe Versorgung; Caregiver; Caregivers; Carer; Child; Children; Kinderbetreuung; Kind; Kinder; Multiple disability; Mehrfachbehinderung; Ausland
Abstract	Background: Families struggle to support family members with profound intellectual and multiple disabilities (PIMD), especially in low resourced settings where formal services may not be available. Method: The adapted Family Community Participation survey, measuring perceptions of community participation, was administered to 67 primary caregivers of children with PIMD in Cape Town by community-based rehabilitation workers. Results: Families were most satisfied going to religious activities and getting together with family and friends. They were most dissatisfied with doing activities together in public and working or volunteering outside the home. Barriers to participation included negative attitudes, insufficient money and unavailability of community activities. Transportation, safety and security were additional challenges. Conclusions: Participants advocate awareness raising, community support and provision of services to address barriers to community participation. Families should be consulted on community issues to integrate their specific family needs into the overall needs of the community. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01