Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning from the Voices of Caregivers

Autor/inn/en	Crais, Elizabeth; McComish, Cara S.; Kertcher, Emily F.; Hooper, Steve; Pretzel, Rebecca; Mendez, Lucia; Villalobos, Michelle
Titel	Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning from the Voices of Caregivers
Quelle	In: Focus on Autism and Other Developmental Disabilities, 35 (2020) 4, S.246-256 (11 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1088-3576
DOI	10.1177/1088357620922165
Schlagwörter	Autism; Pervasive Developmental Disorders; Disability Identification; Clinical Diagnosis; Caregiver Attitudes; Barriers; Screening Tests; Diagnostic Tests; Young Children; Access to Health Care; Age Differences; Social Bias; Racial Bias; Whites; Hispanic Americans; American Indians; Parent Attitudes; Asian Americans; Behavior Problems; Symptoms (Individual Disorders); Professional Personnel; Knowledge Level; Beliefs; Cultural Influences; North Carolina + Suchen Sie Ihr Suchwort? Autismus; Screening-Verfahren; Diagnostic test; Diagnostischer Test; Frühe Kindheit; Age; Difference; Age difference; Altersunterschied; Racial discrimination; Rassismus; White; Weißer; Hispanic; Hispanoamerikaner; American Indian; Indianer; Elternverhalten; Asian immigrant; United States; Asiatischer Einwanderer; USA; Psychiatrische Symptomatik; Personalbestand; Wissensbasis; Belief; Glaube; Cultural influence; Kultureinfluss
Abstract	This study explored caregivers' perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers' suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process. (As Provided).
Anmerkungen	SAGE Publications and Hammill Institute on Disabilities. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01