Parents' Knowledge of Their Child with Profound Intellectual and Multiple Disabilities: An Interpretative Synthesis

Autor/inn/en	Kruithof, Kasper; Willems, Dick; Etten-Jamaludin, Faridi; Olsman, Erik
Titel	Parents' Knowledge of Their Child with Profound Intellectual and Multiple Disabilities: An Interpretative Synthesis
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 33 (2020) 6, S.1141-1150 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Kruithof, Kasper)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12740
Schlagwörter	Parent Child Relationship; Caregiver Role; Children; Intellectual Disability; Multiple Disabilities; Severe Disabilities; Research Reports; Knowledge Level; Intuition; Expertise; Child Advocacy + Suchen Sie Ihr Suchwort? Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Child; Kind; Kinder; Intellect; Disability; Disabilities; Verstand; Behinderung; Multiple disability; Mehrfachbehinderung; Severe disability; Schwerbehinderung; Research report; Forschungsbericht; Wissensbasis; Expert appraisal; Kinder- und Jugendanwaltschaft
Abstract	Background: Parents' knowledge of their child with profound intellectual and multiple disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this study was to explore the nature and transferability of this knowledge. Method: We conducted an interpretative synthesis, searched PubMed, CINAHL, Philosopher's Index and PsycINFO and included fourteen studies. Results: Parents' knowledge was based on their long-lasting and special bond with their child and described as an intuition, a gut feeling, a sixth sense and a sense of knowing. Parents applied their knowledge as experts in interpreting their child's intended communication, well-being and pain, and as advocates opposing the more objectivist approach of medical professionals. Showing by example and passing on narratives were seen as important ways of transferring this knowledge. Conclusions: Suggestions are made on how to apply and retain parents' knowledge to improve care and support for people with PIMD. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01