Supporting People with an Intellectual Disability and Dementia: A Constructivist Grounded Theory Study Exploring Care Providers' Views and Experiences in the UK

Autor/inn/en	Herron, Daniel Lee; Priest, Helena M.; Read, Sue
Titel	Supporting People with an Intellectual Disability and Dementia: A Constructivist Grounded Theory Study Exploring Care Providers' Views and Experiences in the UK
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 33 (2020) 6, S.1405-1417 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Herron, Daniel Lee) ORCID (Read, Sue)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12768
Schlagwörter	Intellectual Disability; Dementia; Caregivers; Caregiver Attitudes; Family Role; Health Personnel; Professional Personnel; Social Support Groups; Needs; Planning; Holistic Approach; Clinical Diagnosis; Foreign Countries; Services; United Kingdom + Suchen Sie Ihr Suchwort? Intellect; Disability; Disabilities; Verstand; Behinderung; Demenz; Caregiver; Carer; Betreuungsperson; Pfleger; Medizinisches Personal; Personalbestand; Social support; Soziale Unterstützung; Grundbedürfnis; Ablaufplanung; Planungsprozess; Holistischer Ansatz; Ausland; Dienstleistung; Großbritannien
Abstract	Background: There is a need to better understand the experiences and support needs of paid and family carers of people with an intellectual disability and dementia, and the role of Intellectual Disability Dementia Care Pathways (IDDCPs). This study explored the experiences of carers, and IDDCPs and other support structures within those experiences. Methods: A constructivist grounded theory methodology was implemented. Data were obtained through 23 semi-structured interviews with two family carers, eight paid carers and eight healthcare professionals. Findings: The study's theory produced five interrelated categories: Impact of Dementia, Challenging the Diagnosis Process, Continuum of Support, Continuity and Continuum of Understanding. Conclusions: Findings have demonstrated the importance of planning and supporting carers' holistic needs; the role of an IDDCP in the post-diagnostic support (or lack of it) for carers; and the importance of a timely diagnosis of dementia. Recommendations for practice are offered. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01