Autism Spectrum Disorder/Takiwatanga: An Integrated Data Infrastructure-Based Approach to Autism Spectrum Disorder Research in New Zealand

Autor/inn/en	Bowden, Nicholas; Thabrew, Hiran; Kokaua, Jesse; Audas, Richard; Milne, Barry; Smiler, Kirsten; Stace, Hilary; Taylor, Barry; Gibb, Sheree
Titel	Autism Spectrum Disorder/Takiwatanga: An Integrated Data Infrastructure-Based Approach to Autism Spectrum Disorder Research in New Zealand
Quelle	In: Autism: The International Journal of Research and Practice, 24 (2020) 8, S.2213-2227 (15 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Bowden, Nicholas)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361320939329
Schlagwörter	Autism; Pervasive Developmental Disorders; Foreign Countries; Research; Incidence; Comorbidity; Neurological Impairments; Developmental Disabilities; Children; Adolescents; Young Adults; Behavior Problems; Emotional Disturbances; Intellectual Disability; Gender Differences; Individual Characteristics; Racial Differences; Ethnicity; Age Differences; Socioeconomic Status; Place of Residence; New Zealand + Suchen Sie Ihr Suchwort? Autismus; Ausland; Forschung; Vorkommen; Neurodegenerative Erkrankung; Entwicklungsstörung; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Young adult; Junger Erwachsener; Gefühlsstörung; Intellect; Disability; Disabilities; Verstand; Behinderung; Geschlechterkonflikt; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Rassenunterschied; Ethnizität; Age; Difference; Age difference; Altersunterschied; Socio-economic status; Sozioökonomischer Status; Wohnort; Neuseeland
Abstract	New Zealand has few estimates of the prevalence of autism spectrum disorder and no national registry. The use of administrative data sources is expanding and could be useful in autism spectrum disorder research. However, the extent to which autism spectrum disorder can be captured in these data sources is unknown. In this study, we utilised three linked administrative health data sources from the Integrated Data Infrastructure to identify cases of autism spectrum disorder among New Zealand children and young people. We then investigated the extent to which a range of mental health, neurodevelopmental and related problems co-occur with autism spectrum disorder. In total, 9555 unique individuals aged 0-24 with autism spectrum disorder were identified. The identification rate for 8-year-olds was 1 in 102. Co-occurring mental health or related problems were noted in 68% of the autism spectrum disorder group. The most common co-occurring conditions were intellectual disability, disruptive behaviours and emotional problems. Although data from the Integrated Data Infrastructure may currently undercount cases of autism spectrum disorder, they could be useful for monitoring service and treatment-related trends, types of co-occurring conditions and for examining social outcomes. With further refinement, the Integrated Data Infrastructure could prove valuable for informing the national incidence and prevalence of autism spectrum disorder and the long-term effectiveness of clinical guidelines and interventions for this group. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01