Inclusion, Acceptance, Shame and Isolation: Attitudes to Autism in Aboriginal and Torres Strait Islander Communities in Australia

Autor/inn/en	Lilley, Rozanna; Sedgwick, Mikala; Pellicano, Elizabeth
Titel	Inclusion, Acceptance, Shame and Isolation: Attitudes to Autism in Aboriginal and Torres Strait Islander Communities in Australia
Quelle	In: Autism: The International Journal of Research and Practice, 24 (2020) 7, S.1860-1873 (14 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Lilley, Rozanna) ORCID (Pellicano, Elizabeth)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361320928830
Schlagwörter	Autism; Pervasive Developmental Disorders; Attitudes toward Disabilities; Indigenous Populations; Pacific Islanders; Social Isolation; Identification; Clinical Diagnosis; Inclusion; Behavior Problems; Parent Attitudes; Family Relationship; Children; Parent Child Relationship; Foreign Countries; Australia + Suchen Sie Ihr Suchwort? Autismus; Sinti und Roma; Pacific Rim; Inhabitant; People; Pazifischer Raum; Bewohner; Soziale Isolation; Identifikation; Identifizierung; Inklusion; Elternverhalten; Child; Kind; Kinder; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Ausland; Australien
Abstract	This is the first qualitative study to investigate experiences of, and attitudes towards, autism in Aboriginal and Torres Strait Islander communities in Australia. Understanding the complexity of these attitudes is crucial because they influence the recognition of autism as well as the ways in which individuals and families are supported. Twelve families with 16 autistic children living in diverse regions of Australia participated in a semi-structured interview. The interviews were thematically analysed using the six-step process outlined by Braun and Clarke. The analysis identified a marked tension in participants' accounts. On the one hand, participants described negative feelings, including shame associated with atypical behaviour, stigmatisation and the social isolation of families, which potentially point towards under-identification or misdiagnosis. On the other hand, they also described inclusive attitudes, including 'looking after each other' and a growing acceptance of autistic differences. This positive model of support for and acceptance of autistic children and their families may well contribute to good outcomes for autistic children and adults in Aboriginal and Torres Strait Islander communities. More research is needed on cross-cultural and pluralistic understandings of autism, parental perceptions and family experience. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01