Communicating about Death and Dying with Adults with Intellectual Disabilities Who Are Terminally Ill or Bereaved: A UK-Wide Survey of Intellectual Disability Support Staff

Autor/inn/en	Tuffrey-Wijne, Irene; Finlayson, Janet; Bernal, Jane; Taggart, Laurence; Lam, Claire Kar Kei; Todd, Stuart
Titel	Communicating about Death and Dying with Adults with Intellectual Disabilities Who Are Terminally Ill or Bereaved: A UK-Wide Survey of Intellectual Disability Support Staff
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 33 (2020) 5, S.927-938 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Tuffrey-Wijne, Irene) ORCID (Finlayson, Janet) ORCID (Taggart, Laurence) ORCID (Lam, Claire Kar Kei) ORCID (Todd, Stuart)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12714
Schlagwörter	Death; Adults; Terminal Illness; Grief; Intellectual Disability; Foreign Countries; Staff Development; Communication Skills; Allied Health Personnel; Caregivers; Caregiver Training; United Kingdom + Suchen Sie Ihr Suchwort? Sterbefall; Tod; Todesfall; Trauer; Intellect; Disability; Disabilities; Verstand; Behinderung; Ausland; Personnel development; Personalentwicklung; Kommunikationsstil; Caregiver; Carer; Betreuungsperson; Pfleger; Großbritannien
Abstract	Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690) completed an electronic survey. Detailed data were obtained from staff where a client had died in the past 12 months (n = 111), was terminally ill (n = 41) or had been bereaved (n = 200). Analysis included descriptive and chi-squared statistics. Results: 52.6% of people with intellectual disability who were terminally ill were told about their illness, and 18.1% were told they would die. Of those experiencing an anticipated bereavement, 32.4% of staff said no one talked about this with them beforehand. A quarter of staff had received training on end of life or bereavement. Conclusion: Death affects many people with intellectual disability. Staff require training and support in communicating death. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01